Histamine intolerance - Information on urticaria and flushing and help for allergies and IBS

 
 
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CASE STUDIES PATIENTS

CASE 1: Melissa

After about 3 days of starting your new medication I noticed a difference. The sneezing stopped almost straight away. After a week the diarrhoea was almost gone, headaches disappeared, tiredness died down so I didn't have to take afternoon naps on weekends and could stay awake past 10pm. The heart palpitations and flushing went away and I no longer have to eat every hour or suffer dizziness. Still bloated a lot of the time and have a bit of an upset tummy about once a week.
This is a miracle supplement and has helped loads. I can't stray too far from hour Histamine diet though – although I have been able to add bread to my diet without too much trouble. Apart from this all my meals are based on the diet. Once a week I have been trying one new item but always end up with diarhoea or flu-like symptoms.
Due to the delay with the new medication (medication is still in the test phaseI had a month without it - within 3 days the sneezing and snotting came back, one week later I had bloating and stomach pain - although I didn't have diarrhoea it wasn't normal. Then one by one the other symptoms came back along with a new one of itching!
I have been trying to claim my life back but it is hard when my diet is limited. I find it hard to find things I can eat in restaurants and usually have to accept that I may be unwell the following day! If I go out with friends after work I have to leave early so I can cook lunch for the next day (or if I get home too late I am stuck with just fruit for lunch) I even went to see a band play in a pub but they had run out of mineral water and there was nothing else I could drink!
My imagination is a bit lacking with the diet and so I have eaten porridge for breakfast, cold rice and vegetables for lunch then hot rice with veg and meat or omelette in the evening almost every single day for 7 months. It's funny - there are recipe books for every single diet you can imagine except for the HIT diet! Have any of your patients thought of writing one? I'd be very interested in having a recipe book.

Anyway, this wasn’t really meant to be a moan…….just to let you know that the medication is working wonders but I’m still limited by what I can eat and as a consequence my lifestyle is almost as limited as it has always been. All I want is to not have to worry about what is in food and live a normal life. Is there any hope for me?!

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CASE 2: DAVID

My name is David, born 22/05/75, lived in Oxfordshire all my life.

Nine years ago, in 2000, I was heavily into body-building and at just over five feet tall weighting over thirteen stone I was pretty serious It had taken me four years to get that big. The next step was steroids to get even bigger. I started taking Clembouteral and Naposin. After just ten days off my steroid use my illness started.
First came the feelings of overwhelming anxiety, clammy shin, increased heart rate. I felt like I was going to faint and a massive feeling of " I have to get the hell out off here". A couple of times I have wanted to get out of my car while I have been driving. At first this was happening daily so I thought that I would just stop eating all together because every time I ate I felt like I was going to die. I lost four stone in three months on just trying to eat as little as I could. I spent about six months in bed and just around the house and had about two years off work.
In the beginning I saw my doctor a lot and was told that it's all in my head and I was just thinking myself ill so I changed doctors and surgery. My new doctor was a lot more helpful and tried me on anti-histamines. That seemed to make me feel a bit better but still not normal. I started buying food books because if you eat and you get ill then surely it must be what you have eaten. I came across one book on allergies and started a rotation diet and slowly started to work out what food were OK and what foods made me ill. On a Friday I ate walnuts and strawberries and every Friday night I would be on my way out and had to turn around to come home feeling ill. So walnuts and strawberries were the starting point then cheese and eggs and tuna fish. I started buying more books and every time I got ill I would read more and more and then I found out what it was: HISTAMINE. I hate that word. Over these past nine years if histamine was a man I would have beat him up. It has made my life very hard. I can't go out for meals, have a drink or a take-away. I can't eat my favourite foods or go abroad as normal people. I have to carry a medicine bag.
Everything started to get better. I started to eat more trying to avoid the "H" food and slowly with lots of anti-histamines and a good diet I started having some life back. Things were good for the next six years I still had my illness but had good time and started to think I was better. Then I stopped my diet and started eating more and more "H" foods and becoming addicted to chocolate.
Then in 2006 it came back (I know now that it never went. I was just masking the symptoms with anti-histamines.). I got a rash across the top part off my body, could not breath very well and rushed my self to the doctors where I was given a injection of Cortisol to calm everything down. For the last three years since that day I have just been living a half life with good times and bad times.
It always gets worse in March (because of the pollen). I was at the hospital this year in March and had more Cortisol again. After that my girlfriend made me find help and that help came. I looked on the internet and found Dirk Budka. I immediately asked for an appointment. I have just got my test results back and it's not all in my head. I am histamine intolerant, with a diaminoxidase (DAO) reading of just 8 and it should be between 15-25 so I guess that it's bad. And this is where I am at today.
Looking back I have always had problems with histamine with having rashes as a boy and in my early twenties with hay fever and asthma. I think that the steroids made my allergies ten times worse. I wish I had never taken them. It is easy to say it now.
Best regards,
David